The Blog

We arrived at the hospital bright and early so Gracie could be admitted to pre-op and we could get a few extra snuggles before they took...

JR had his 3 month Heart Cath and when he was brought back from the recovery we were told that all looked good all of his pressures were...

I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...

After JR was back up to his room we left the hospital at 12:30, we were back at the hospital by 7:30 because we didn’t want to miss when...

If you are not caught up on my blog at this time, GO BACK NOW! Nothing is going to make sense moving forward as I talk more about the...

How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...

We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...

After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...

Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...

To say this second pregnancy was easy would be a big FAT lie. I started showing by 10 weeks(maternity clothes instantly), I had horrible...

We were home, happy and settling into our new norm for what could be a few days or a few months but either way, we were going to enjoy...

It was March 2020 and In the thick of COVID-19. My husband is a firefighter and first responder. With his call volume for civil on the...

Do you know that baby weight that you gain no matter what when you are pregnant? Whether it is you used pregnancy as an excuse to eat...

We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...

Even though it didn’t look good on the surface, I knew in my heart that Emmy was going to be okay. I never once doubted that truth. “Your...