The Blog

It has been 1,336 days since Gracie was admitted to the hospital, 1923840 minutes since Gracie was admitted, four birthdays, three...

On January 13th our sweet Gracie was discharged from the hospital. When you are in and out of the hospital for as long as we were, you...

At 8:18 pm on June 22nd, Hank made his way into this big, wonderous world. He was born by c-section after a failed attempt at starting...

My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...

Staying the night with Grace was... VERY stressful. I knew the beeps and alarms like the back of my hand by now. I knew if things were...

I remember the day I decided on my future son’s name. Luka. What a cute name right? He was named before he was even born. I was...

We arrived at the hospital bright and early so Gracie could be admitted to pre-op and we could get a few extra snuggles before they took...

How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...

Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...

We were re-admitted on a Sunday and were hoping that it was simply a fluid in her lungs, a few extra doses of Lasix (diuretic) and we'd...

I was rushing Gracie to the ER. I continued to look back in the rearview to her baby mirror to make sure that she was still breathing. My...