The Blog

In honor of Heart Month and Wear Red Day for our heart warriors, I wanted to get a blog out!! It has been a while since I wrote about our...

Hi, my name is Suzie, I am a Mama to 3 amazing kids. Makenna 12, Giancarlo 11, and my heart warrior Zayn 2. Our life has been pretty...

On October 26th, 2021, Hank was scheduled to have his first open-heart surgery, the Glenn. As I mentioned in my previous post, his...

At 8:18 pm on June 22nd, Hank made his way into this big, wonderous world. He was born by c-section after a failed attempt at starting...

My name is Morgan, and I’m the mother of a beautiful heart angel, Hank. My family lives in Boise Idaho. While you’re reading this, there...

July 1st, 2021. 8 months and 4 days old. 246 days we waited to bring our bundle of joy home. The night goes without a problem and we make...

Gracie was slowly coming out of the delusional state she was in, had all of her chest tubes still in place BUT at least I could hold my...

My heart sank when I heard that my baby was going into unexpected heart surgery. This was not a part of the plan that was discussed...

I remember the day I decided on my future son’s name. Luka. What a cute name right? He was named before he was even born. I was...

We arrived at the hospital bright and early so Gracie could be admitted to pre-op and we could get a few extra snuggles before they took...

I took Gracie in for our normal follow-up with cardiology. This meant another echo to check on her heart pressures and a lung profusion...

After JR was back up to his room we left the hospital at 12:30, we were back at the hospital by 7:30 because we didn’t want to miss when...

How do you prepare yourself for your little 2 month old to be getting a Heart Transplant??? Well to be honest I have no idea! I don't...

We planned a day for my two brothers, nieces, and my sister-in-law to meet Gracie. They had previously met Paisley very briefly. We met...

After we had gotten the news that JR was officially on the Transplant list time seemed to slow down. During this time there was not a...

Come October Gracie was still home, happy and working on building up her feeds. She was currently at 65mL/ feed 4x a day. It was still...

It was March 2020 and In the thick of COVID-19. My husband is a firefighter and first responder. With his call volume for civil on the...

Even though it didn’t look good on the surface, I knew in my heart that Emmy was going to be okay. I never once doubted that truth. “Your...

February 21, 2020. It was game day. It was finally time for surgery. Emmy was in surgery from 7:00 am-4:15 pm. She was on bypass for five...

At 17 weeks, Emmy was diagnosed with Dextrocardia with Situs Inversus. In the simplest of terms, her heart is on the right side of her...